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Who We Are

At Alström Angels we are passionate about helping children with disabilities. We strive to make an impact on medical research advancements, family support offerings, and awareness for rare and orphan diseases.   

The Alström Angels Mission: Alström Angels is a non-profit charity dedicated to raising funds for Alström Syndrome genetic and medical research, increasing awareness of the rare disease amongst the general public and medical communities, and bettering family support for those affected by the Syndrome.

Although Alström Syndrome itself is extremely rare, the medical complications it causes are not:

  • Blindness
  • Deafness
  • Type 2 Diabetes
  • Dilated Cardiomyopathy
  • Congestive Heart Failure
  • Liver & Kidney Failure
  • Chronic Obstructive Pulmonary Disease 

A medical advancement in just one area of Alström Syndrome can literally help millions of children and adults suffering from these illnesses.  Through the advancement of Alström Syndrome research we can broaden our scope beyond the select population of Alström patients and help the general public, and ultimately the world.

What We Do

Alström Angels is a 501 (c)(3) non-profit charity dedicated to raising funds for Alström Syndrome research, increasing awareness of the rare disease, and bettering family support for those affected.  

Alström Syndrome is a very rare genetic disease that affects children by causing complete blindness, deafness, type 2 diabetes, dilated cardiomyopathy, congestive heart failure, COPD, and kidney and liver failure. It is one of the most brutal diseases there is, as it touches every organ in the body. Most children are lost in their late teens and early twenties due to these medical complications.

Worldwide there have only been 800 cases of Alström Syndrome documented in medical history. The 780th case is a 4-year old little girl right here in Lubbock. Her name is Bryce.

Bryce's family has made it their personal mission to bring more awareness to Alström Syndrome and to raise funds so more medical research can be done.  And with their mission, Alström Angels was formed.

Bryce, 4-years old

Diagnosed with Alström Syndrome

Lubbock, Texas

Bryce Silly Face